Where Do I Go For Help!!





CONTENTS

Dyspraxia Explained
Signs and Symptoms



What Parents and Teachers Can Do
Associated Conditions




HITCHIN-The National Organisation
ALL ABOUT US AT DFCD



So, after weeks, months, years of trying to pursuade friends, family, teachers and doctors that you are not an over-protective parent and that your child is not just clumsy or naughty for no reason you have finally, at long last, been given a diagnosis of Dyspraxia... What a relief... now you know what the problems are, you can solve them, right?

The answer to this question is more difficult than you would imagine as getting the right intervention early can prove almost impossible without a huge effort by parents and carers themselves.

The main problem often overlooked is that a child with Dyspraxia sometimes can have other associated conditions such as Dyslexia, Adhd, Semantic Pragmatic Disorder, Autistic Spectrum disorders such as Aspergers Syndrome making treatment a complicated issue. However the purpose of this page is to give parents in the Durham Area some places to go and people to contact in the search for information on Dyspraxia and how to get help. Also there are some links to sites in other parts of the county that you may find useful.

Obviously the Dyspraxia Foundation County Durham (DFCD)site is a good first step. Click on the icons above or below to get a full over view of what we offer.

ALL ABOUT US AT DCFD
ADHD Group

This site gives information and support to children and adults regarding ADHD or ADD



Durham Parent Partnership

Click on logo and enter the word Dyspraxia in the "SEARCH" box to find out what Durham's Dyspraxia Service can offer. There is also lots of information on Parent Partnership which may prove useful to you.


Dyspraxia Foundation at Hitchin

This group is the national organisation and has information about support groups and local co-ordinators in your part of the country.



Kidsactive

Kidsactive is a group focusing on play opportunities for children not just with Dyspraxia but with a wide range of other disabilities. They are active in the North East and would look forward to your call. Sometimes children with Disabilities cannot get access to the normal range of activities other youngsters take for granted so if your child is missing out give them a ring.


Conductive education

This site gives information of conductive education for children with Dyspraxia and focuses on raising self esteem and social awareness.


Durham Area Disability Leisure Group

DADLG or Durham Area Disability Leisure Group is a Chester Le Street based organisation that runs sporting and social activities for children and young people with disabilities of all ages throughout Co Durham. To see more about DADLG click DADLG NOW


Contact a Family National HOME PAGE

Discovering that your child has a special need or disability is probably one of the most devastating experiences that a parent will live through. The feeling of isolation - both physically and emotionally - can often be acute. However, experience tells us that some of this pain can be relieved by sharing thoughts and fears with other families in a similar situation. Contact a Family have information on over 1,000 rare syndromes and rare disorders and can put families in touch with each other. For more information about Contact a Family in the NEast Click Here Now..


BBCi This BBC site gives more information regarding Dyspraxia but also highlights some none UK sites which could prove useful.


Apraxia-Kids EFA research Apraxia-Kids is a program of The Childhood Apraxia of Speech Association of North America (CASANA) and includes the Apraxia-Kids website, messageboards, listserv, and monthly internet newsletter. CASANA is a not for profit organisation dedicated to "advocating for each child to have a voice." The Association's Mission: to strengthen the support systems in the lives of children with apraxia so that each child is afforded their best opportunity to develop speech.


The Dyscovery Centre Cardiff

How we can help... The Dyscovery Centre provides a specialist and high quality service using an interdisciplinary approach for individuals with living and learning difficulties such as Development Co-ordination Disorder, Dyspraxia and Dyslexia. The Centre eliminates the problems of finding different specialists to assist with various aspects of care. In promoting a practical approach to meeting the needs of its clients, it offers assessment, treatment and resources such as equipment, therapeutic activities and literature to best meet the whole needs of the individual at home, achool, work and in the community. The centre is also able to offer follow-up and review services which ensure ongoing support. Packages of care are tailor-made to suit client requirements and individual quotations are provided.

NEED HELP WITH STATEMENTING / EDUCATIONAL TRIBUNALS / BENFITS?

Obviously the Dyspraxia Foundation County Durham (DFCD)site is a good place to start. Click on the icon below and contact Tina by email or ring her on 0191.384.8283. Tina and her husband Paul have been through the Statementing, Tribunal and Benefit systems in Co Durham for their son over the past 10 years and have been successful in getting help for him. Tina will be only too happy to point you in the right direction. However in the meantime the following few sites will certainly help the process. Both Network 81 and IPSEA provide help and personal advice to aid you through the paperwork and could even provide 1 to 1 support at any hearings you may attend.

On a personal note, if you have had all the right assessments, all the advice and still your child is not getting the help they need in school even after getting a Statement then go to Tribunal. It might be a daunting prospect but well worth the effort.

ALL ABOUT US AT DCFD


Network 81

Network 81 is network of parents working towards properly resourced inclusive education for children with special needs. The focus is on legislation affecting children with special needs. They are working towards inclusive schooling to meet the needs of all children recognising their right to be pupils amonst their peers, whilst being educated according to their needs.
Statementing and Tribunal matters are therefore very important and Network 81 can help and guide you through the process. Ring 0870.7703306 (mon to fri 10am - 2pm)


IPSEA

If you are the parent of a child with special needs, and you are having problems with their education, ring IPSEA on our freephone advice line:
0800 0184016
If you live in Scotland, ring: 0131 454 0082
If you live in Northern Ireland, ring: 01232 705654
IPSEA can provide:free independent advice; free advice on appealing to the Special Educational Needs Tribunal, including representation when needed; free second professional opinions.

IPSEA may also be able to help if you feel your child's needs are not being met, for example:
if you are not happy with the way the school is meeting your child's special educational needs; if you want the LEA to assess your child, but they refuse; if the LEA refuse to issue a Statement after assessing your child; if you want to appeal against a Statement when it is first made or when it is amended; if the LEA will not put the school you prefer on the Statement; if you are unhappy with the amount of help your child is being given.


HMSO - How to go to Tribunal

Statutory Instrument 2001 No. 600 The Special Educational Needs Tribunal Regulations 2001
© Crown Copyright 2001 The legislation contained on this web site is subject to Crown Copyright protection. It may be reproduced free of charge provided that it is reproduced accurately and that the source and copyright status of the material is made evident to users. The text of this Internet version of the Statutory Instrument has been prepared to reflect the text as it was Made. The authoritative version is the Queen's Printer copy published by The Stationery Office Limited as the The Special Educational Needs Tribunal Regulations 2001, ISBN 0 11 028892 0. As a DFCD user of this HMSO website please ensure that the copywrite conditions are complied with when viewing or reproducing.


Gov Benefits ie DLA ICA etc This site contains a comprehensive listing of benefits you may be able to claim for your child like DLA or ICA. Please don't ignore these options as you may be entitled to extra income which can go to help pay for new activities for your child which may help their condition ie Horse Riding, Judo, Swimming etc. Just click on the alphabetical listing eg.D for DLA (Disability Living Allowance)


Latest Audit Commission report into SEN Policy and Statementing in this country This site covers many aspects but it include many issues such as health and education and is a very interesting read and I am sure will be of interest and help to some parents of children with disabilities .

Although great care has been taken in the compilation and preparation of this website to ensure accuracy, The Dyspraxia Foundation County Durham cannot accept responsibility for any errors or omissions. Any medical information is provided for education/information purposes - you should obtain further information from your medical practitioner. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites.

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The Dyspraxia Foundation is a registered charity (No 1058352) and is limited by Guarentee. Registered in England (No 3256733).
THE DYSPRAXIA FOUNDATION (DFCD) is an affiliated member of the National Group based in Hitchin.

Click Image to EMAIL Tina (our Co-ordinator) at DYSPRAXIA FOUNDATION COUNTY DURHAM.
Write to DFCD PO BOX 315, DURHAM.



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